The Lived Experience of Melanoma Diagnosis, Treatment, and Follow-Up in Hispanic Patients: A Qualitative Analysis

How to Cite

1.
Ho A, Greene A, Pottinger H, Brown ME, Costello Collin. The Lived Experience of Melanoma Diagnosis, Treatment, and Follow-Up in Hispanic Patients: A Qualitative Analysis. Journal of Clinical Dermatology and Surgery. 2024;2(2). doi:10.61853/q4hqte56

Abstract

Introduction Although melanoma occurs less often in Hispanics than non-Hispanic whites, the mortality rate of melanoma is higher.1 Previously reported challenges to melanoma management in Hispanic populations include a lack of awareness regarding risk, limited healthcare access, and lower physician suspicion.2 In this qualitative study, we aimed to better capture the experience of Hispanic patients with melanoma. Methods Mayo Clinic melanoma patients who self-identified as Hispanic/Latino with a pathological diagnosis of melanoma between 1/1/2019 and 6/30/2023 were identified in a retrospective database. All 86 patients were contacted to participate in a quantitative survey and the 1.5-hour virtual interview. In total, three patients participated. Recorded interviews were translated, transcribed, and analyzed by ASU's cultural research specialists. Results Participants were 100% female, with a mean age of 67 years. Two of three patients had prior understanding from previous employment or family in the medical field. All participants had their melanoma identified through a physical examination. Participants were given information on follow-up timelines to schedule themselves. No challenges to follow-ups were identified. Despite being satisfied with the patient care, all three agreed that a patient navigator would be helpful. Discussion Previous qualitative studies on melanoma diagnosis/prevention in minority patients do not go further into a patient’s lived experience with melanoma.3 Our pilot study showed that although there were no perceived barriers, likely due to a higher baseline of health literacy, participants noted that other people of Hispanic/Latino descent may have difficulties with barriers of care, such as language or lack of knowledge of the healthcare system.